Rare disease gene editing clinical trial for children also hidden... safety controversy spreads | Yonhap News

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中 희소질환 아동 유전자편집 임상서 또 숨져…안전성 논란 확산 | 연합뉴스
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A second death has occurred in a clinical trial in China using gene editing technology to treat rare diseases. A young boy suffering from Duchenne muscular dystrophy died after an immune response following treatment, marking the second such case following the death of a six-year-old last month. The treatment company, HuiDaGene, reported the death according to relevant regulations but said that specific details would be released in a future paper. This incident has raised concerns about the safety and information disclosure practices surrounding gene therapy research in China.

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